Support Groups
Detailed information on finding a support group for parents affected by a birth defect.
This page has links to websites with information about support groups for parents affected by birth defects. We hope you find these sites helpful. Please remember we don't control or endorse the information given on these websites, nor do these websites endorse the information given here.
Genetic Alliance, 26400 Woodfield Road #189 Damascus, MD 20872, Phone: 202-966-5557, Email: info@geneticalliance.org
National Down Syndrome Congress, Suite 108, 30 Mansell Court Roswell, GA 30076, Phone (toll free): 800-232-6372 (NDSC) or phone: 770-604-9500, Email: info@ndsccenter.org
National Down Syndrome Society, 8 E 41st Street, 8th Floor, New York, NY 10017, Phone: 800-221-4602, Email: info@ndss.org
National Organization for Rare Disorders (NORD) , Suite 310, 1900 Crown Colony Drive Quincy, MA 02169, Phone (toll free): 800-999-6673 or phone: 617-249-7300
SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) , 2982 South Union St. Rochester, NY 14624
The Compassionate Friends, 48660 Pontiac Trail #930808 Wixom, MI 48393, Phone (toll free): 877-969-0010